Emma's Hope Book

“What We Attach Ourselves to When We are Most Afraid”

Emma typed that she wanted to write - “How about a story about what we attach ourselves to when we are most afraid.” 

“What We Attach Ourselves to When We are Most Afraid”

Emma typed that she wanted to write - “How about a story about what we attach ourselves to when we are most afraid.” 

“My Imaginary Ancestor”

Preface:  My mother has been tracing our family’s history for many years now.  Many of our ancestors on her side of the family were German and wrote in German script, which she has been translating the letters they wrote and kept. 

“My Imaginary Ancestor”

Preface:  My mother has been tracing our family’s history for many years now.  Many of our ancestors on her side of the family were German and wrote in German script, which she has been translating the letters they wrote and kept. 

Science Lessons

This past month Emma has been having Skype calls with Dr. C. (PhD in bio-chemistry) Dr. C has been giving Emma science lessons three to four times a week and so far he’s covered cells, cell division, cell mutation, genetics, chromosomes, DNA, nutrition, ecological footprints, world population and so much more.  

Science Lessons

This past month Emma has been having Skype calls with Dr. C. (PhD in bio-chemistry) Dr. C has been giving Emma science lessons three to four times a week and so far he’s covered cells, cell division, cell mutation, genetics, chromosomes, DNA, nutrition, ecological footprints, world population and so much more.  

Statistics and Parenting

Fear.  I have grappled with fear my entire life.  I’m 54 years old.   You’d think I’d have figured out a magic formula to ward off fear by now…  but I have not.  However I have figured out some things that used to frighten me, but that no longer do.  Things like this:

“Among all autistics, 75 percent are expected to score in the mentally retarded range on standard intelligence tests — that’s an…

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The Seduction of “Recovery”

The Seduction of “Recovery”

Perhaps the single most insidious and ultimately destructive promise during those early years after my daughter was diagnosed was the idea of “recovery.” There were a multitude of different diets, the gluten-free/casein free diet and the GAPS diet, that some said had “recovered” their child, making them indistinguishable from their peers.  There were the bio-med treatments ranging from daily B-12…

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An Erratic Life

Our lives seem to be particularly erratic these days.  We are homeschooling, trying to get some semblance of a routine, but that hasn’t happened yet.  I keep thinking it will, any time now… Each morning I wake up with a plan, fully intending for it to be put into action and assume everything will fall into place.  I’ve thought this since the end of May when we pulled Emma from her school.  At a…

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Emma Interviews

Emma has been interviewing various family members.  So I wasn’t surprised when she wrote that she wanted to conduct another interview.  Except this time she wrote that she wanted to interview me.  This is part one of that interview…

Emma:  What sparks your imagination more? Words? Pictures? Music?

It depends on the situation.  I have been inspired and moved by all three at various times and can…

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The Messiness of Blogging

The Messiness of Blogging

Years ago I wrote about the difficulties involved in writing a balanced and yet honest depiction of life.  I just reread that post and my first response was to delete it.  But as I no longer do things on this blog without asking Emma, I asked her if she wanted me to remove it and others like it.  She wrote, “no.”  So I’m leaving it, though, for the record, if this were left entirely up to me, I…

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Alone? Frightened? Worried?

“No one knows how to help us.”  This was what I once said to my husband.  It was many years ago.  So many, I no longer remember the year.  Along with that realization was this one – “We are in this alone.”  And while, at the time, that thought terrified me, it was the beginning of finding another way.  It was the moment when I realized all these people we were looking to for guidance, didn’t know…

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A Researcher Asks…

A Researcher Asks…

I speak with a researcher who says, “we need to hear the pain and needs of the parents of individuals affected by the disorder.”  She goes on to say, “Nobody else can know better what the needs of the affected person are.”  “Oh,” I say, “how about speaking with Autistic people?”  Surely they know better than any what it’s like to have once been a child.  The researcher tells me this is not their…

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